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December 29, 2012
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Chronic Illness and support.

:iconkizin-of-kaplumba:
Kizin-of-kaplumba Featured By Owner Dec 29, 2012  Hobbyist Writer
My name is Bethany and I've been suffering with two separate chronic illnesses since 2009. First I developed a gastric stomach ulcer which wasn't diagnosed for months as I sort of hid it. I'm not the kind of person to make a big deal out of pain or being ill and my life was so busy that I just got on with it, until I collapsed in front of my mother and she started making a big deal out of it for me. I was taken to the hospital and was eventually assigned a specialist. A short time after that I had glandular fever and developed ME/CFS although of course that also took a long time to diagnose. I'm not going to go into all the symptoms but I will tell you that it decreases what you can do to almost nil at first and that it takes a lot of time and effort to get better. I missed all of year 10 at school and did the whole of my GCSE's in one year, where I was only going in for seven and half hours a week because that was all the energy I could claw back after a whole year of working on my illness. I only finished my English, Maths and Science and am now in my first year of A level. I am going to be retaking this year as it is over double the hours I was doing before and is simply proving to be too much.
To the point.
My illness means that I can't travel far on my own, and as it is not a visible illness I have found that the few friendships that have lasted are becoming strained, as are my family relationships. It's been almost four years now, and people are beginning to ask why I'm not better yet, or simply forget that I'm still ill. The pressure from school and lack of support is pretty much destroying me emotionally. I don't even have an ME/CFS consultant anymore as she told me that there was nothing more she could tell me, and as I am now sixteen I am not even seeing my specialist anymore. I have researched support groups in my area but there are none I could get to on my own and I refuse to make my parents feel worse or have more pressures put on them from having a sick child and so I cannot tell them how I'm feeling.
I'm sorry for the long post, but I've found that I need to talk, and that there might be others out there that feel the same.
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Devious Comments

:iconssensory:
ssensory Featured By Owner Dec 30, 2012  Student Writer
I have a few chronic illnesses myself, so I understand you. I'm here if you need anyone to talk to, and I'm sorry you have them.
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:iconjuliabohemian:
Juliabohemian Featured By Owner Dec 29, 2012  Professional Photographer
Sadly, chronic fatigue syndrome doesn’t seem to be recognized as being as disabling as it actually is. As someone who suffers from fibromyalgia, I can sympathize. You will definitely begin to find out who your real friends are. Do you belong to any support groups or online forums for chronic illness?
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:iconkizin-of-kaplumba:
Kizin-of-kaplumba Featured By Owner Dec 29, 2012  Hobbyist Writer
I am unable to actually go to any support groups in person without help so no, and I haven't found any online that look to be able to help me.
CFS is a newly recognised illness in many ways, and with it not being a visible illness it isn't as understood or as well known as it should be.
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:iconjuliabohemian:
Juliabohemian Featured By Owner Dec 29, 2012  Professional Photographer
This is a good one- [link]
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:iconkizin-of-kaplumba:
Kizin-of-kaplumba Featured By Owner Dec 29, 2012  Hobbyist Writer
I will look into it, thank you very much.
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:iconprosaix:
prosaix Featured By Owner Dec 29, 2012
So all that just to tell us you want someone to talk to or did I miss something? :confused:
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:iconkizin-of-kaplumba:
Kizin-of-kaplumba Featured By Owner Dec 29, 2012  Hobbyist Writer
Someone to talk to, a place for other to talk, and advice people can offer whether related to my illness or relationships. There isn't much out there for CFS/ME suffers, and I'm sure the same could be said for other chronic illnesses. I wanted to make a place for people to talk, about whatever they need to. For me, it is simply support and understanding, for others it may be something more.
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